What do we do?
Members of the group have been involved in project design, development and implementation stages of research studies. Integrating public and patient involvement (PPI) into your research study can greatly increase your chances of getting a quality project through the funding, recruitment and dissemination of findings process.
Researchers are encouraged to discuss ideas for projects from an early stage, patient representative input can improve proposals before the grant application or ethics submission. The group assists in ensuring that patient and carer views and needs are considered.
Discussion forum
We are interested in all types of dementia research!
Come and sound out new ideas or disseminate your findings with us - we are the people your research ultimately impacts upon.
Prioritise important topics
Is there an area of research you think is overlooked?
We can help identify and prioritise topics which are important to you, and those who will be taking part.
Spread the word
The best way to increase the awareness of research? Word of mouth!
Coming to us may help you find potential participants; some of our members are part of various research and support groups, and will happily disseminate information they think others will be interested in.
Enhance recruitment
We are home to potential participants.
Our members can help provide useful advice on the pathways to take to recruit more patients.
Clinical protocol development
Does your research involve patient volunteers?
Feedback from our group of dementia patients can help to shape a protocol toward ethical approval, improve recruitment and retention onto a clinical study.
Improve study documents
We sense check your written communication.
We can review lay summaries and patient facing documents to check that they are clear and understandable to the target audience; ensuring they are ready to be sent into the Research Ethics Committee.